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Larisa E.
12-30-2007, 06:55 PM
Important Links
The following links are provided as a service for those in search of additional information related to Childhood Cancer. Click on the relevant category link below to display additional information.
http://www.cncf-childcancer.org/ImportantLinks_111.aspx
Childhood cancer many links
Guide to Internet Resources for Cancer
http://www.cancerindex.org/ccw/guide2l.htm
Websites of Helping Organizations in Russia
http://www.russianadoption.org/charity.htm

http://www.acor.org/ped-onc/ccorg.html
CHILDHOOD CANCER CENTER: RESOURCES
http://www.oreilly.com/medical/childcancer/news/organizations.html

RECOMMENDED WEBSITES :
The charge of the MLA Cancer Librarians Recommended Web Sites project is to provide medical librarians with a resource to use in their daily practice and teaching. Secondly, it is our contribution to the Medical Library Association so that the headquarters staff can refer oncology professionals to a list of quality health web sites.
http://www.selu.com/cancerlib/recommended_websites.html#Government%20&%20Organization%20Web%20Sites

Partial List of Patient Cancer Libraries
in the United States and Canada
http://www.selu.com/cancerlib/patient_libraries.html

VALENCIA - In the 26 years since Cris Embleton founded Healing the Children - a nonprofit organization that helps bring ailing children from Third World countries to the United States for medical treatment - more than 7,000 children have made that journey.
Since 1979, Embleton, a Valencia resident, has juggled responsibilities from arranging travel for sick children to finding doctors and nurses across the United States to volunteer their time and services.
Currently, there are nearly 20 foreign children in Southern California awaiting surgery or treatment or recovering from procedures who are here with the help of Healing the Children.
``We have a 10-year-old boy, Nestor, who is having brain surgery today,'' Embleton said Friday as she drove to the airport as part of another Healing the Children case. ``He's from Guatemala and he's had seizures all his life.
``The first time he was at my house he had a seizure. He hasn't been able to attend school because of (the seizures). This surgery is going to change his life,'' she said.
Four or five of the nearly 20 children currently in the Los Angeles area are staying with host families in the Santa Clarita Valley, Embleton said. John, 13, from the Philippines, has bone cancer and is scheduled to have his left leg amputated today.
Eight-year-old Joe, also from the Philippines, has a brain tumor that doctors have said will likely kill him. Another 8-year-old boy, this one from Mongolia, is recovering from surgery to correct his severely clubbed feet, Embleton said.
http://www.thefreelibrary.com/RESCUING+SICK+CHILDREN+NONPROFIT+TREATS+THIRD+WORL D+KIDS-a0132104173

"The University of Minnesota is a world leader in UCB transplant research and Dr. John Wagner, the Scientific Director of Clinical Research for the University of Minnesota’s Blood and Marrow Transplant Program and Stem Cell Institute, is internationally recognized as a leader in the field.
If you want to change the world, start by changing the life of a child. Over the past few years, I have focused my philanthropic efforts on the research and treatment of pediatric cancer and blindness. This commitment is expressed in grants to national and international organizations all over the world. My mission is simply stated: reduce the incidence of childhood blindness in third world countries, and expand the number and reach of cancer detection and treatment programs for children.
This mission has led to my involvement in Camp Okizu and the Seva Child Vision Campaign. These outstanding programs are comprised of passionate people committed to addressing the critical needs of young people. By inspiring communities, states and nations, by motivating individuals and organizations, by equipping local leaders with programs and facilities, we will make a difference in the lives of millions of children.
We live in an exciting time of discovery. New treatments and technologies that offer tremendous promise are within our reach. Stem cell research for example, offers tremendous potential to treat disease and disorders that today, have no current therapies or at best, partially effective ones. Programs contributing to the progress of this research are the prologue to an era of medical discovery of cell-based therapies. One day these therapies will restore the promise of full lives to those children whose lives today are truncated by critical illness.
Philanthropy is a business in which we are CFOs for God. A responsible approach, balanced with passionate desire to change the world for the better is a worthy endeavor, not only for the wealthy, but for all who take up the challenge of making a difference. We choose these organizations to be recipients of grants including pediatric hospitals, clinics and other organizations dedicated to the early detection and treatment of cancer and blindness in children."

http://vichka-sun.livejournal.com/8017.html

http://www.globalvoicesonline.org/2007/02/02/russia-photo-marathon-for-children-with-cancer/


http://www.siop.nl/frameset_achter.asp?p=3
International Sciety of Pediatric oncology

http://www.candlelighters.ca/
Childhood cancer foundation

http://www.ukccsg.org/
Children Cancer and Leukimia Group

http://www.icccpo.org/
International Confederation of Childhood Cancer Parent Organisations (ICCCPO)

Larisa E.
12-31-2007, 02:38 AM
CancerIndex the Guide to Internet Resources for Cancer family of Web sites, established 1996, now with over a thousand pages. It is maintained on a voluntary / not-for-profit basis.

http://www.cancerindex.org/



http://www.childhoodcancerguides.org/



Cancer Research Funds and Foundations
•American Cancer Society-The American Cancer Society is the largest private source of cancer research funds in the United States, second only to the federal government's National Cancer Institute in total dollars spent.
•National Childhood Cancer Foundation -This is a non-profit organization that supports pediatric cancer treatment and research projects.
•International Myeloma Foundation -A non-profit organization. Site has information on treatment, research and patient support.
•Leukemia Society of America-Information about Leukemia about Leukemia, Lymphoma, Hodgkin's Disease and Multiple Myeloma.
•Lympoma Research Foundation of America-This is a national non-profit organization that provides funds for lymphoma research and patient education. The site has valuable information about these diseases.
•American Brain Tumor Association -A non-profit organization that provides information on brain cancer treatment, research and support.
•The Brain Tumor Society-Committed to a cure through research, education and support.
•Bone Cancer Research -A new web site for the Bone Cancer Research Fund at the Indiana University School of Medicine. The funding is used for osteosarcoma and related bone sarcoma research. This web site will be updated from time to time to keep you up to date on the progress of this research.
•Corporate Angel Network -They provide free air transport to qualified cancer patients on corporate jets.
Medical Journals Online-Links to many of the major medical journals by category.

http://www.oncolink.upenn.edu/types/types.cfm?c=14


Links to Internet Resources on Childhood Cancer
http://www.acor.org/ped-onc/WebInfo/choicelinks.html

http://www.acor.org/ped-onc/diseases/diseases.html

Videos and support
http://www.pbs.org/independentlens/lioninthehouse/index.htm


Other Organizations and Web Sites
American Society of Pediatric Hematology/Oncology
Telephone: 1-847-375-4716
Internet Address: www.aspho.org
American Brain Tumor Association
Telephone: 1-800-886-2282
Internet Address: www.abta.org
Candlelighters Childhood Cancer Foundation
Telephone: 1-800-366-2223
Internet Address: www.candlelighters.org or www.candle.org
(Texas Division - more general information for patient use)
Child Life Council
Telephone: 1-301-881-7090
Internet Address: www.childlife.org
CureSearch – Children's Oncology Group
Telephone: 1-800-458-6223
Internet Address: http://www.curesearch.org
Harriet Lane WWW Links (maintained by Johns Hopkins University)
Internet Address: http://www.derm.med.jhmi.edu/poi
National Brain Tumor Foundation
Telephone: 1-800-934-2873 or 1-510-839-9777
Internet Address: www.braintumor.org
National Cancer Institute, Pediatric Oncology Branch Cancer Information Service
Telephone: 1-800-4-CANCER or 800-422-6237
Internet Address: home.ccr.cancer.gov/oncology/pediatric/
National Children's Cancer Society, Inc.
Telephone: 1-800-532-6459
Internet Address: www.nationalchildrenscancersociety.org
National Coalition for Cancer Survivorship
Telephone: 1-877-622-7937 or 1-301-650-9127
Internet Address: www.canceradvocacy.org
Pediatric Oncology Group
Telephone: 1-312-482-9944
Internet Address: www.pog.ufl.edu
The Leukemia & Lymphoma Society
Telephone: 1-800-955-4572
Internet Address: www.leukemia-lymphoma.org


Children Diagnosed with Cancer: Financial and Insurance Issues

http://www.cancer.org/docroot/CRI/CRI_2_6x_financial_and_insurance_issues_7.asp


National Organizations and Web Sites*
In addition to the American Cancer Society, other sources of patient information and support include:
Government
http://www.cancer.org/docroot/CRI/content/CRI_2_6X_Resources_7.asp?sitearea=CRI